For those of us with kiddos that have urinary diversions (vesicostomy in our case) you know that it’s always a struggle to keep our little ones dry. We’re always trying to come up with a new and more creative way to diaper. So I figured I would pass along the things that seem to be working for us right now.
We still use a size 4T pull-up with a small diaper turned inside out and tucked in the front over the stoma. It’s not ideal, but it seems to be the best thing that we’ve been able to find. We have discovered a few things throughout our journey that make keeping her dry and comfortable a little easier.
The summer isn’t too bad for us. Lizzie can wear dresses, and as long as we change her diaper frequently, she stays dry. Winters are a lot more difficult. For one, pants have never been a good option for Lizzie because of her stoma. We just can never keep her dry and comfortable in them. Things just don’t stay in place very well. Dresses haven’t been a good option either because tights have the same effect, and without them she freezes her little legs off. When she was little we just kept her in one piece outfits. That begins to get a LOT more difficult once you get out of the 2T range. You can sometimes find a few 3T-4T, but they are VERY limited other than overalls. Lucky for us we live in the country, so we do a lot of overalls. lol! Even better yet, we found a workable solution!
Baby Legs! They are fabulous, and even better they are super simple to make if you don’t want to shell out a bunch of cash to buy them. Basically they are leg warmers. They look like tights/leggings, but they stop at the thigh which makes them perfect for Lizzie. Now she can wear dresses without freezing to death, and diaper changes are super easy because you don’t have to take off shoes and tights. You can just pull the pull-ups up over the shoes and baby legs! So much easier than overalls! And I used women’s knee socks to make them, so they only cost $1-$3 to make! Here’s the tutorial I used to make mine.
Our next exciting new find has yet to be fully tested, but we are hopeful. As I’m sure many of you may know, night time is the most difficult time to keep our kiddos dry. For one Lizzie drinks a lot at bed time, and we try not to limit her water intake too much because of her constipation issues. We discourage late night drinks, but we don’t limit them if she insists. Sometimes that makes for a very wet night. Once Lizzie wakes up wet, it’s often hard to get her back to sleep. As long as her pajamas stay dry, she usually does ok. So we had some custom cloth diapers made for Lizzie (which I’m hoping to get over the Holidays!). They are higher in the abdomen area and have really absorbent inserts that velcro into the front. They also velcro across the front to adjust the sides, so we are able to keep them really tight. The outside is made of a waterproof material that will help keep the pjs dry. We’re hoping it works, especially now that it is getting cold at night. When I get them, I’ll be sure and post pics and let you know how they are working out. I wish we could use them all the time, but with a constantly draining stoma, it just doesn’t seem doable. I am considering going back to cloth inserts for her pull-up, but I think that is as cloth as I can get right now.
The last recent finding is fold down pants. They are the stretchy knit pants that fold at the waist (like this, only in a smaller size). Instead of folding them down, we keep them pulled up so that they come higher than her pull-up. It has actually worked pretty well in keeping everything in place too, which is a bonus. Again, as long as we keep her changed often, we can keep her pretty dry. She still has the “lump” at her abdomen from the little diaper, but a long sweater takes care of that. Another great thing about them is that Walmart has them for $5 a pair up to 5T!
I know a lot of you are also onesie users, so I thought I would pass along a few other links. This is a great onesie making tutorial in case anyone wants to try your hand at making them yourself! And here is a link to onesie extenders so that you can make your 2T’s into 3Ts. These might also be pretty easy to make! Here is a link to a site that makes onesies up to 5T. They are a little pricey, but these can be hard to find sometimes! fwiw The Children’s Place also makes 3T onesie long sleeve shirts in limited quantities.
If anyone has any other creative diapering ideas, we would LOVE to hear them! You can leave a comment here, or join us on our message board here. For more information on what a Vesicostomy is and how to care for them, click here.