About this site
I started this site for a number of reasons, the most important being as a resource for parents of children with Vesicoureteral Reflux and other bladder issues. Please check out our new kidney reflux site at www.kidneyreflux.info. I remember feeling so overwhelmed and confused when we got Lizzie’s original diagnosis of VUR. Since then I have spent hours researching her condition, and hope to pass on some of the info and links I have gathered along the way.
Our daughter Lizzie was diagnosed with Vesicoureteral Reflux when she was 6 weeks old. One afternoon her fever spiked, and we ended up spending a week at the hospital. It was discovered that she had developed a UTI which had moved into her kidneys and then spread through her body. She was a very sick little girl.
We were glad to have the diagnosis of a treatable condition. We knew that she may need to have a surgery at the age of 5 years, but until then the treatment would be daily antibiotics and routine check-ups. We had no idea that we would spend the next 11 months in and out of hospitals with constant kidney infections, and new complications. By a year old, Lizzie had 8 kidney infections, 6 hospital stays, 2 picc lines, dozens of tests, constant antibiotics, and three surgeries.
Our Lizzie is an amazing little girl, and we have been blessed with two beautiful, healthy children. Despite all of her “issues”, Lizzie is a fat happy baby. Her current diagnosis, for what its worth, is complicated. After a failed reimplant surgery, she continued to have grade 4/5 reflux, so we opted to have a urinary diversion put in place. She will have her vesicostomy for another 2 years (give or take), assuming that the deflux injection had or can stop the VUR. She also has a grossly enlarged bladder, which may be due to nerve damage in the peripheral nerves that lead to the bladder. She also has mild to moderate hydronephrosis, and a duplicated collecting system, which means she has 4 ureters, instead of 2. So that is Lizzie in a nutshell. For more on our story, click here.
For more medical information and explanations, you can read about Vesicoureteral Reflux in our VUR pages. There are tons of links (still working on it) to good studies and articles in our VUR resources page.