Lizzie’s Journey

Ok, I just updated this on 4/14/09.  Apparently a lot of the pages I was linked to moved.  I think most of these are correct now.   If you have trouble with any of the links, try our links page at kidneyreflux.info.  I update that one a little more often.

I’m hoping this page can serve as a good resource for information on Vesicouretera Reflux, and other bladder and kidney conditions. This page is always a work in progress,  so please check back often.   I still have tons of bookmarks that I am going through. If you have any good links that you think should be added, let me know!

Urinary Tract Infections in Children -

• Great Article on UTI in children http://kidney.niddk.nih.gov/kudiseases/pubs/utichildren/
• Detailed article on UTI and kidney infection in chidren http://emedicine.medscape.com/article/804866-overview

VUR –

• A good article about VUR http://emedicine.medscape.com/article/439403-overview
• Really good comprehensive look at VUR, technical http://www.emedicine.com/radio/TOPIC741.HTM

VUR Testing –

• Urodynamics – Very good informative article on urodynamics testing http://kidney.niddk.nih.gov/kudiseases/pubs/urodynamic/index.htm
• VCUG – Good article on what it is and what to expect http://www.radiologyinfo.org/en/info.cfm?pg=voidcysto&bhcp=1
• Renal Ultrasound – description and what to expect http://www.aurorahealthcare.org/yourhealth/healthgate/getcontent.asp?URLhealthgate=%2214856.html%22
• Mag3 Test – description and what to expect http://www.childrenshospital.org/az/Site810/mainpageS810P0.html
• DMSA – description and what to expect http://www.childrensmemorial.org/depts/radiology/dmsascan.aspx
• MRI – description and risks http://www.nlm.nih.gov/medlineplus/ency/article/003335.htm

Deflux Injection –

• Deflux site describing what it is and why it is effective http://www.deflux.com/Templates/Page.aspx?id=268
• Article in support of Deflux over antibiotics, high rates of effectiveness http://www.medscape.com/viewarticle/545750
• Study showing over 90% success rates for 1 st Injection http://www.ncbi.nlm.nih.gov/pubmed/18756873?ordinalpos=3&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_DefaultReportPanel.Pubmed_RVDocSum
• Abstract from study showing some kids not good candidates for Deflux http://www.ncbi.nlm.nih.gov/pubmed/18710762?ordinalpos=6&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_DefaultReportPanel.Pubmed_RVDocSum
• Study showing Deflux more effective in reducing breakthrough UTI than antibiotics http://www.medscape.com/viewarticle/545750

Ureteral Reimplantation -

• Excellent article on what reimplantation is, and what to expect from surgery http://www.chp.edu/cs/Satellite?blobcol=urldata&blobheader=application%2Fpdf&blobkey=id&blobtable=MungoBlobs&blobwhere=1209137633484&ssbinary=true

Prophylactic Antibiotics -

• This is a good article against the effectiveness of antibiotics http://www.medscape.com/viewarticle/528227
• This is a study showing the ineffectiveness of antibiotics at preventing both infection and renal scarring http://www.medscape.com/viewarticle/575842
• Abstract showing probiotic treatment to be as effective as antibiotic prophylaxis http://www.springerlink.com/content/1741p5k22284×265/
• This study links antibiotic use to higher incidence of asthma http://www.sciencedaily.com/releases/2007/06/070611185240.htm
• Study showing Deflux as more effective than antibiotics in preventing recurret UTI http://www.medscape.com/viewarticle/545750
• Study on research that is being done (not yet available) in treating recurrent UTI http://www.sciencedaily.com/releases/2005/02/050213121835.htm
• Antibiotics and resistant bacteria http://en.wikipedia.org/wiki/Antibiotic_resistance

Dysfunctional Elimination Syndrome and Voiding Dysfunction

• This is a great article on how DES can slow resolution time and cause failed reimplantation http://www.medscape.com/medline/abstract/9719268?src=emed_ckb_ref_0
• Very good (very technical) article on Voiding disorders http://www.emedicine.com/ped/topic2414.htm
• An abstract discussing VUR and elimination disorders http://www.ncbi.nlm.nih.gov/pubmed/18491738?ordinalpos=10&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVDocSum
• A good article on bladder and bowel dysfunction in relation to VUR http://bcbsma.medscape.com/viewarticle/562914_6

Duplicated Ureters -

• This is a great comprehensive explanation of duplicated ureters – very technical http://www.emedicine.com/Radio/topic226.htm
• Abstract from a study on Duplication in regard to UTI and VUR http://www.jurology.com/article/S0022-5347(05)00184-9/abstract
• Study on bilateral sheath reimplantation success rate in duplicated ureters http://cat.inist.fr/?aModele=afficheN&cpsidt=3029602

Support Sites for VUR

• This is a great yahoo group for parents of children with VUR http://health.groups.yahoo.com/group/childrens_urology_network/

Nonneurogenic Neurogenic Bladder (Hinman-Allen syndrome)

• This is an excellent article describing Hinman-Allen http://pediatrics.aappublications.org/cgi/reprint/107/4/S1/949.pdf
• Another interesting and informative article on Hinman-Allen http://pediatrics.aappublications.org/cgi/reprint/54/2/142?maxtoshow=&HITS=10&hits=10&RESULTFORMAT=&fulltext=nonneurogenic+bladder&andorexactfulltext=and&searchid=1&FIRSTINDEX=0&sortspec=relevance&resourcetype=HWCIT
• This is an abstract discussing infantile Hinman-Allen http://www.springerlink.com/content/62115620248kr002/
• An abstract discussing infantile Hinman-Allen http://www.ncbi.nlm.nih.gov/pubmed/17826506?ordinalpos=2&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_DefaultReportPanel.Pubmed_RVDocSum

Vesicostomy

• Good definition and care instructions http://www.childrensurology.co.uk/VesicostomyCare.htm
• Parent Information http://www.cw.bc.ca/library/pdf/pamphlets/Vesicostomy_384_dec04.pdf